Online References for Patients, Families & Friends
Pre- and Post-Organ Transplant


General Online Resources for Transplant and Organ Donation

www.harthosp.org/transplant  
The Hartford Hospital Transplant Program website provides information about the Hartford Hospital transplant program and the specific organs transplanted here. These include kidney, liver and heart transplants. Meet the team and learn more about transplant here.

From Hartford Hospital's Health Library:

www.a-s-t.org  
The American Society of Transplantation provides patient education brochures available in English and Spanish.

www.aotaonline.org
American Organ Transplant Association ia a non-profit organization helping make organ transplant surgery & aftercare available to anyone who needs it.

www.optn.org  
The Organ Procurement and Transplantation Network maintains the only national patient waiting list and features the most comprehensive data available about organ donation. It is part of the Health Resources and Services Administration, HRSA.

www.transplantexperience.com  
Transplant Experience: Sharing, Informing, Inspiring. Sponsored by Astellas, provides information for kidney, liver and heart transplant in English and Spanish. 

www.transplantexperience.com/kidney_support_support_links_kidney.php?f=e  
This link at the above provides links to kidney transplant organizations, information for kidney, liver and heart transplant.

www.transplantliving.org  
Sponsored by Roche, provides frequent updates on organ transplant including recent research findings. Includes information on living donation online tools, fact sheets, multiple links to other sponsors for the site that includes companies and transplant facilities.

www.trioweb.org  
Transplant Recipients International Organization – News about legislation affecting transplantation, TRIO chapters news, e.g. how to be involved in the organ donation float in the Rose Parade, transplant recipients of friend of transplant in the news.

www.unos.org  
The United Network for Organ Sharing offers links to news stories related to transplant and health care, donor information, outcomes data, number of people actively awaiting donated organs as examples.

www.organdonor.gov  
US Department of Health and Human Services – Information about organ donation, criteria for donors and recipients, healthy living tips, resources available.

www.webmd.com/heart-disease/living-with-an-organ-transplant/immunosuppression  
An article on WebMD that provides an overview of life following transplantation, including “dos and don’ts.” 

www.organdonationnow.org
Hartford Hospital is participating in a national collaborative project, the Organ Donation Collaborative. Health and Human Services Secretary Tommy G. Thompson joined with national leaders and practitioners from the nation's transplantation and hospital communities in April, 2003 to launch the Organ Donation Collaborative.

www.lifechoiceopo.org
Links to the LifeChoice Donor Services web pages for more information on organ donation, educational programs and becoming an organ donor.


Online Resources for Kidney Disease, Dialysis and Transplant

www.aakp.org
“The American Association of Kidney Patients (AAKP) is a national non-profit organization founded by kidney patients for kidney patients. We strive to educate and improve the health and well-being of chronic kidney disease (CKD) patients, those on hemodialysis, peritoneal dialysis and transplant recipients.” (AAKP welcoming statement to the website, (AAKP, 2009).)

www.ihs.gov/medicalprograms/kidney/pfc_links/links_index.asp  
Indian Health Service, The Federal Health Program for American Indians and Alaska Natives. Provides multiple links to other organizations, including information about dialysis and transplantation.

www.kidneycarepartners.org  
Kidney Care Partners (KCP), is a coalition of patient advocates, dialysis professionals, care providers and manufacturers working together to improve quality of care for individuals with Chronic Kidney Disease.

www.kidneypatientnews.org/links/LinkA.php
Kidney Patient News: Helping kidney patients achieve optimal wellness….

http://kidney.niddk.nih.gov/resources/organizations.htm
National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC), a service of the Natinoal Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), NIH. Educational resources for patients and health care professionals.

www.kidney.org
National Kidney Foundation (NKF) – provides multiple educational resources for patients and health care professionals. Patient education materials available in English and Spanish.

www.lifeoptions.org
Life Options offers patient support including “Kidney School,” an interactive web-based kidney learning center with 30 minute modules. For Kidney School, use the following link (also found on their homepage): www.kidneyschool.org

www.pkdcure.org
Polycystic Kidney Disease Foundation, information about living with polycystic kidney disease (PKD), patient resources, research studies to treat and cure PKD.

www.rsnhope.org
Renal Support Network, serving those affected by kidney disease by others who have kidney disease.
“RSN VISION STATEMENT: RSN continues to serve the kidney community by instilling health, happiness, and hope through education, advocacy, and awareness... one person at a time."

www.akfinc.org
American Kidney Fund is a national, voluntary health organization. Primary goal is to relieve the often-staggering financial burden associated with chronic kidney failure through patient aid programs.


Online Resources for Liver Disease and Transplant

www.liverfoundation.org
American Liver Foundation is a national, voluntary non-profit health agency dedicated to preventing, treating, and curing hepatitis and all liver ailments.

www.livertx.org
Children's Liver Alliance is a pediatric liver organization dedicated to empowering the hearts and minds of children with liver disease, their families and the medical professionals who care for them.